Building a brighter future for children and young people with Down syndrome 

Downright Special was founded in 2007 by a group of parents in the Hull area, who all had babies with Down syndrome. We now provide support to over 150 children and adults and their families, and local professionals in health and education who work with people with Down syndrome across Hull and the East Riding of Yorkshire. We are the only local organisation offering specialist support for people with Down syndrome. We offer emotional, practical, educational and health support in all aspects of the care and development of people with Down syndrome. 
 
We are a friendly and welcoming group and love it when new families get in touch! 
Our vision is to build a brighter future for people with Down syndrome enabling them to achieve their full potential, at home, at school, in the workplace and in the community. 
Our mission is to provide support, education, training and advocacy services in all aspects of the care and education of people with Down syndrome from diagnosis through to adulthood. 
Downright Special recognises that each individual with Down syndrome is unique and that some may have more complex needs. We pledge to create an environment where all individuals and their families feel welcome and supported regardless of diagnosis or ability. 

The Difference we make 

Downright Special makes a profound difference in the lives of families, children, and professionals by providing unwavering support, guidance, and resources tailored to the unique needs of children with Down Syndrome. For families, we are a lifeline—offering emotional support, practical advice, and a welcoming community where parents can share experiences and celebrate their children's achievements.  
 
We help parents navigate the challenges of raising a child with Down Syndrome, ensuring they never feel alone on their journey. For children, Downright Special creates a nurturing environment where they can grow, learn, and reach their full potential. Through our tailored educational programs and social events, children develop essential skills, build confidence, and form meaningful friendships. We believe every child deserves the opportunity to thrive, and we work tirelessly to make that a reality. 

Training, information, and ongoing support 

Professionals, too, benefit from our expertise and resources. We provide training, information, and ongoing support to those working with children with Down Syndrome, ensuring they have the knowledge and tools needed to offer the best care and education. By fostering collaboration between families and professionals, we create a cohesive support network that empowers children with Down Syndrome to achieve their fullest potential. 
Parent Feedback 
“We came to the Friday Group when Toby was two weeks old and it’s the centre of our whole world for him now. We arrive for the group at about 10am so we all catch up first, have a coffee and the kids play together. Before the lessons start, the kids have a dance session and exercises to work on their core strength and motor skills and then a snack time to socialise and fuel up for their lesson! Toby is two now and he’s in the toddler group for his lesson. The sessions focus on communication using lots of visual resources.  
 
It’s a really well structured lesson. We look at individual letters of the alphabet to help him with his speech. He is also learning colours, shapes and numbers. He is able to do so much more than I ever would have expected. We’ve seen Toby come on in leaps and bounds since coming to the Friday Group. Downright Special has given me the tools to take home and teach him, and they are skills I wouldn’t have had. Magic Bag is the finale to Friday mornings. Everyone sings and signs in a circle, and each child takes a turn to take something out of the bag, so if it’s a frog we sing about it, and learn through play at a pace that is right for our children.” 
- Lauren, Mum to Toby 

Our Policies & Annual Report  

Child Safeguarding 
Adult Safeguarding 
GDPR 
Complaints 
Photography and Filming 
Our Annual Report